Matrix

Matrix, Photo howtogeek.com

I can’t stop the numbers. They trill down my field of vision — awake, asleep, involved or staring into space, alone or with the ones I love. I’m not even certain if I’m seeing real numbers spewed like actuary tables of my years left on the planet, or colors like I’ll use to paint the remaining days, or simply a disconnect, as if all the trains are leaving the station at once and I can’t read the numbers fast enough to know which handle to grab for hoisting myself onto this ride.

Even though I love a metaphor, and this one certainly fits, I hate the numbers. I’m not given to panic attacks, but even in the heart of my quiet moments, I find myself not breathing, or breathing too much, or stopped in my tracks wondering how to breathe, and of course I blame this all on the numbers.

I am awash with numbers. Statistics, probabilities, centimeters, directions, weights and measurements, years, months, days, recovery times, usable hours in a day, fractions for dividing available time into necessary tasks, blueprints for the time I have left. I’m not a numbers girl, and I want them to go away.

As days go, I’ve been a little better lately — more time with family and a few friends, more emails answered and a more manageable pile of things left undone. And I’ve been a little worse — more in need of two bodies that will pin me between them on the sofa in the evenings, laughing at nothing and making sure I stay upright and intact. For every bit of normal-ness I wear in a day, I carry three times the weight of embryonic panic.

And so I stare a lot more now, looking for that steady place in my soul that keeps me still. Trying to find the balance in breath, which is shockingly difficult when you’re off kilter. Trying to live the truth that what’s “important” will vary on a daily (hourly) basis, and that it doesn’t matter if others don’t understand.

In a former life a coworker said, “Every time I look over, she’s just staring out the window,” and another said, “She’s not just staring, she’s designing — that’s how they do it.” And I hope (and believe, in a very small way just now) that I’m designing. I hope that my staring and breathing is giving (new) life to the balance of my days. I hope soon the numbers will stop and the design will begin to make sense in a way that I can recognize and welcome and begin to play with like fingerpaints, when everything is possible and there are no lines or graphs to fit into.

But for now, there are still the running, screaming numbers. Surgery in nine days. Anticipated one week recovery. Anticipated three to four weeks healing. Hoped-for one week balloon radiation; otherwise five – seven weeks of daily radiation. Five years (1,825 days) taking an estrogen-sucking drug (“If you want to live,” said doctor #1) or (“Your choice,” said doctor #2).

And Poof! Over. Done with. On with your life.

But I will never be the same. And it will take a lot of staring and holding and breathing to get me to the next place.

Color Me

Fluff my petals, Sweet Pink. Splatter me with color til I’m overfull and drool my yellow footprints smack across the roads. I crave the crazed inanity of a blue-tailed skink, the bite-me brilliance of a psycho-electric bleeding heart, the frivolity of sidewalk elms sporting useless knitted frocks. Color me. Color me to insanity and genius, then wipe me clean and color me some more.

The photos below are from recent walks around Charlotte, mostly in South End. Newspaper Box on Camden Road, Mural Detail by Carlleena Person on Camden Road, Glass at Ciel Gallery, Spinach Wrap at Common Market, Farmer’s Market Veggies, Candy Wrapper Purse (happily mine), Pastels at Cheap Joe’s Art Stuff, Road Kill of a Kinder Kind on East Boulevard, Smiley Face on the Painted Bench at Common Market, you make my days.

Mapping a New Landscape

When I was a girl, every Saturday morning breakfast was punctuated by my father pushing his chair back from the table, standing, and announcing that he was headed out to “survey the estate.” Our “estate” was quite small — the size of an average back yard in the city — but luscious, with tended perennial beds, brick paths, a secret Japanese garden with a winding stream and waterfall, a couple of small brick terraces, climbing vines, tall hedges, a fig tree, and a hand-carved grape arbor. I loved this garden because it was cool and beautiful and welcoming, but more importantly, because it lived and breathed a family. Not only did we spend summer days and nights here, but it existed because we existed. Every flower and blade of grass, every scraggly shrub starter, every brick, every hand-patinaed piece of statuary, every pond liner and edging stone and wooden arbor joist had been planted and carved and laid and edged and watered and tended by my visionary parents, with the aid of three fledgling wheelbarrow drivers. I’ve lived in gardens ever since those early years, but my first remains the gold standard. Not because it was prettier or more lush or contained a magical variety of flora, but because watching an ordinary family create that garden taught me just how much influence we have over the landscapes of our lives. I grew up believing that anything was possible with a little sweat, imagination, some scavenging, a tool or two, and someone to help with the wheelbarrow.

And my life has been very much like this. When I’ve acted on this belief, some pretty magical things have happened. I’ve always claimed to be lucky, to be blessed, to have escaped turmoil, despair, poverty. I’ve been pretty good at remembering that I have everything I need to live, create, and love, even if I can’t immediately remember which drawer or which recess of my brain has it safely tucked away. It has been, most certainly, a wondrous life and, despite a few sorrows, I could hardly have penned it any better.

And now at 57, too old to be tragic and too young to be inevitable, I have cancer, and though I am quite often irritatingly adept at seeing things coming, I did not see this.

Today will be hot, but the sky is dishing out a soul-stirring bluster. Yesterday I watched a tree throw her leaves in an arc that crossed a lane, fluttering madly in a last dance. This morning the walnut and elm on opposite sides of the garden are tossing their dual ingredients into the tango in swirls like fall, and it feels both happy and sad to see a summer breeze awash with still-green leaves. No longer green myself, I still feel the flutter and recognize change.

And so I look at the bountiful landscape of a life and wrestle to place my changing self into the life I’ve loved. Though my prognosis is good, I’m irritated that my future, which should map out genetically at a good thirty years (still peanuts!) will now be measured and celebrated in five year increments — barely time enough to make a bucket list, especially one scheduled around chemo treatments. And I’m irritated that my gurus, carefully chosen by the matching of heart to soul, will now be peopled with strangers selected by paper credentials and calendar availability, and that they will have as much say, and perhaps more, in the way I live my days from sunup to sundown for the rest of my life. And I’m irritated that cancer so often attacks women in the very organs that give and sustain life — Karma, wake the hell up!!!

Of course the bottom line is that the landscape of my life has also changed, and shockingly so. The way I look at my days has changed. The way I think and experience has changed. In a way, I’m okay with that. But I need to start over like a child with my trowel in the dirt, learning the feel of both peat and clay, the difference between nectars and nettles, how to map paths around this sinkhole or that hornet’s nest. Landscape, I want to look you full in the eye with my colored lenses off and my antennae roused. I need to know you intimately so that I can meet you on my terms. And yes, I will bitch and moan. I will withdraw. I will snap. I will be preoccupied. I will cry. I will cling. I will write more than I will speak. I will not wear the smiley face. I will be unpredictable, just like this disease. Just like this changing landscape that looks so foreign to me in this moment. But in the end, there will be beauty.

I want to be Zen again, one day, but make no mistake that this time I will be Zen with a dragon tattoo, really good hiking boots, and backup. So please pardon me while I raise a little hell and clear the nettles.

Rousillon

Landscape of Rousillon, France
Read More Here

Howl

Coyotes are moving in. I haven’t seen one yet, even though our garden along the wooded creek provides some prime hors d’oeuvres, but I’m getting the emails every couple of days now. “Coyote spotted on Cassamia Glen. Coyote StareHe was so thin he walked through the bars of my iron gate.” “Coyote spotted on Forest Drive, trotting down the middle of the street in broad daylight. A neighbor’s dog barked like mad, and the coyote never even glanced over.” Phantoms are walking among us, their wildness brushing too close to our cultivated lives, and I can’t help feeling a little like Harry Potter spying the wispy cloaktrails of a dementor.

Back in the 80’s when I owned every Molly-Ringwold-worthy funky pin to be found at Wal-Mart, I had a cute little pewter rendition of a howling coyote. He seemed so whimsically free-spirited and a little like me with a heart full of song and a soul full of wanderlust. A cocker spaniel with a great set of lungs. Youthful myopia, I loved you so! Wiser now with better glasses and living in an increasingly cat-free neighborhood, coyotes simply suck, and their eerie howl is about as close to the tolling of the bell as it gets.

Coyotes, unlike me, have no fear. Airplanes are hitting them on runways. What living being can you name that will stand its ground while a 900,000 pound 747 bears down screaming at 130 decibels? No wonder the frenzied barking of a domesticated golden retriever doesn’t warrant so much as a glance.

I have fear. I feel it when I think of the friend who died on Tuesday after my husband held his hand and laughed goodbyes with him, less than 30 days after the doctors saw cancer. I feel it when I think of a friend who died of unseen injuries on Sunday, 20 days after walking away from totaling her car and so grateful to be alive. I feel it when I think of my father-in-law, dead only 11 days after discovering lung cancer, or my mother, dead in 6 months from a condition considered “easily controlled by drugs,” or my too-many friends seeking life through chemotherapy and other poisons. Coyotes are everywhere — hungry, unafraid, and thin enough to pass through our gates.

And I want to learn how to beat the coyote at his own game. I want to learn that laser beam focus, that unflinchable exterior, that iron-clad intent. And most of all, I want to learn to stop being so “nice”, so allowing, so patient, so quiet, so willing to take a back seat, so ready to fight for others but not for myself. I’m not there yet, but I’m in training, and the coyotes are taunting me to give it a go. There will be howling.

Howl, Mosaic Art by Pamela Goode

Leaving Home on a Morning Walk

Poem and Photo by Pamela Goode

When I walk now,
I gasp a little.

Weak-kneed and queasy,
trusting myself only on this simple
path —
straight and safe and
known

(we love the known),

but walking,
nonetheless.

Sun and breeze a shield of sorts,
holding me together or
(at least)
familiar parts of me
within arm’s
reach.

Comfort enough
for now.

 

c. Pamela Goode 2012

Undoing

Undoing, Photo by Pamela Goode

Today, I am undoing. In this modern-day world where “doing” divides the successful from the also-rans, and “undoing” is tantamount to cutting your losses and limping back to the starting gate, it feels surprisingly good. I’m not frantic to make up the time lost, I’m not cursing myself over a lack of precision, nor am I on pins and needles about the final outcome. I like to work with a fair amount of precision. I aim for perfection, but I’m not a slave to it. I like to let the fabric of life have its way with me — and who’s to say this project or that won’t turn out better with a little free spirit thrown in? They almost always, always do.

So I’m slicing and removing, rather happily, what was really pretty much good enough to begin with. And it isn’t because I need the control, although that would be understandable. And it isn’t because I’m looking for pristine, although I’d certainly take it. And it isn’t because I feel anger and the need to destroy, or even the need to create. It feels calming, and free, and soft, and intimate, and in some ways almost motherly, although I’m not sure which of us is the mother at this moment.

And I think it feels good because it’s deliberate. I made a deliberate decision to take apart and resew these seams not only to make them straighter or to ease the way for the next, but because it feels good to get in there and wrestle with the guts, to decide, on my terms, which to leave alone, perfect or not, and which to slide my fingers along, unravel, consider, and remake in the style of my choosing. And yes, I am actually piecing and sewing and resewing fabrics, and yes, this is blissfully metaphoric. And of course the best part is that when I’m finished, it won’t just be pieces of cloth fitted together and beautiful, but pieces of cloth fitted together and beautiful and deeply, deeply considered, and this is what love is, yes?

And tomorrow the sun will be out and I will be in the garden, and my next post will be about weeding.

Proliferative Rat Bastards

I don’t know how long I’ve had breast cancer, only that today was the first day I woke up knowing it. Today was the first day I opened my eyes aware that something inside me wanted more, and it wasn’t love or inspiration or creation or enlightenment. Today was the first day I opened my eyes aware that something inside me isn’t “me” at all, and I’m telling you, it’s a total Sigourney Weaver moment, but without the big paycheck.

There are many qualities I have to reach for on a daily basis, because living outside of myself does not come so easily for me. My True Self is 99% sensitivity and introspection. I see in others what I know in myself, and I try to serve as a partner along the path. And if I’m all about looking inward, how did I not see this? How did I not feel this? How the hell did I grow this, and allow it to feast on me?

There are many things I’ve worried about in my life, and breast cancer was never, ever, ever even a blip on the radar. I don’t have a single risk factor for breast cancer. I’ve taken diligent precautions in other areas that were much bigger threats to my health. I don’t even think mammograms hurt — piece of cake. Although I hadn’t had one in a while. Not for any good reason — is there a good reason? The last thing my beloved doctor of 12 years said to me before she left the building a month ago and joined a “boutique” practice was “Go downstairs and make an appointment for a mammogram before you leave the building.” And I did. If I could afford the $2500 annual fee, I would walk into her new office and hug her big.

And this is what it feels like: Strength. Calmness. Hysteria. Dissolution. Resolve. Lack of Focus. Resignation. Belief. Giving Up. Anxiety. Muteness. Dirtiness. Openness. Love. Hate. Love. All on the fast track and vibrating like a loaded spring inside me, blocking the pathways between sensing and knowing, between realizing and speaking, between the intent and the act.

I’m not going to turn this blog into a cancer diary, because this damnable grabby greedy rat bastard stealer of life won’t be with me for long. But he has forced himself uninvited and unwanted onto my path, and he will change me a bit just as love and childbirth and friends and Italy and art have changed me, and I will continue to scour the corners of my psyche to see what’s hiding and what needs the light of day for a better understanding. So yeah, more of the same. But I’ve got my growl on now.

Looking at Trees

Costa Rica Tree, by Pamela Goode

When the kids were young and we lived in a small town in South Carolina, I was briefly a biker. I’d hop on my Wal-Mart Special every afternoon, plug in Jason’s walkman and pedal as hard as I could, asking questions and listening for answers in the music. After the requisite number of laps around the park by the bay, I’d coast into the historic district and walk my bike into the cemetery at Prince George, laying my body flat on the weathered stone that covered one of the raised tombs beneath the dogwoods. Music off now, I’d stare through the leaves, lime or forest or claret as the seasons changed, peering beyond them to watch dark birds so far beyond my eyes etching circles into the blue. I didn’t think, and I didn’t need to think — the watching filled my heart and soul and soothed my limbs and made the way seem easy. Sometimes I’d let a question lie beside me on the stone in quiet co-existence. More often than not, I walked back to my bike and headed for home with a fresh view. I made friends with the issues, and the issues were usually content to fall away.

Some days I need more trees. I need to be able to stand on the sand near the bay, or sit on the gritty picnic table in salty jeans with my face upturned and listen to the trees talking each to each, the wind singing by on tiptoe or deep-throated, grabbing me by the ears and rouging my cheeks and urging me to join the dance, to hear, to grasp, to run, to yelp with joy or sorrow or passion or fear or laughter but to pull out of myself and join in the sound of the pines and the sky and the circling birds. I haven’t been there in a while.

I once wondered if I listened hard enough, or well enough, or often enough, if I could learn the words or the tune or the meaning of treesong. Outside of Harry Potter and, was it Babes in Toyland? — I’ve never seen an evil tree. Trees are universally comforting. They shelter, cradle, feed, and dance and soothe us with a sense of permanence and balletic invincibility. I need to take myself back there.

Some days the best thing that happens is the kindness of a stranger with grandma hair and warm hands, making sure she looks you in the eye when she speaks so you can feel her words even if you can’t hear them. Some days it hurts to reach because you have a hole in your flesh big enough to pass a pair of tweezers through. Some days those you adore want to be with you every minute, because they need to hold on to the love and make it real enough to stand as a fortress. Some days are made of nothing but hours and the ticking of second hands, because nothing exists between the tweezers and the call. Some days there is nothing better than holding hands, and nothing that heals as much as looking at trees.

Running Behind vs The Odd Moment

I’m always running behind. Walking into work with a Carmen Miranda melange of must-be-done today tasks arranged willy-nilly and aslant, balanced precariously on my buzzing brain. And after a day’s work, I walk back into our house sporting a very similar headpiece — the fruits may have changed, but the basket is still overfull and topheavy, threatening to spill and be lost at any moment.

What are You Waiting For?Most of the time I’m okay with this. I love my life, and I snarl at sleep as a major annoyance. But I don’t have much down time.

So it was a bit of a surprise when I realized the gallery was covered Friday morning, and I had a few hours off before a long weekend workshop. Supplies were in and set-up couldn’t happen before 4:00. I cleaned my workspace (some would call it a kitchen), washed the sink, and sat.

And for someone who is never, ever, ever bored, I was oddly close. Quite, and oddly, at loose ends.

Given enough time, of course, I could have been productive. Or even mindfully unproductive, which can be just as good (and sometimes better). But caught unaware and given a gift — the one gift we ALL covet — I was totally unprepared.

Boredom always seems so expansive, no matter how momentary. It’s as if the mind, the heart, and the soul are all busy elsewhere, and all that makes you you is off on holiday. How is it that we can so easily forget who we are, what we love, our passions and pleasures? How is it that I can sit for a moment with time at my feet, and not be able to remember what I love? And yet I can always remember the chores left undone.

I’ve always laughed at myself, or maybe scoffed is the better word, when I’m trying to think of something to make for dinner and can’t remember a single favorite. For years I’ve been meaning to make a list: “food I like to eat.” And now it appears that I need to make another: “things I like to do.” I don’t want to be caught staring into space the next time a few odd  moments fall into my lap. Hmmm, sounds like the topic for my next post 🙂