Red

Finally, I am mad. I guess going through stages isn’t really my nature, and maybe it isn’t such a surprise that I have accepted cancer so graciously. I’ve never been one to make a fuss. It isn’t expected of me, and the times I’ve expressed strong thoughts in the past, the diversion from my usual temperament has not been well-tolerated. And so it goes, these days.

I’m not immune to “life” — or as I sometimes call it, “crap.” Part of this gift of experiencing the universe is learning to navigate with grace and wisdom, and if it were all easy, we’d die just as we’re born — still fighting to keep our toys. I’m game for the paths, wherever they lead, but I do wish for a few small courtesies along the way.

Large courtesies I’ve got in spades – love, fabulous friends near and far, sweet notes, red lipstick, sock monkeys, cocktail jelly beans, new teas, funny photos, tomato pie, taxi service, Tuesday dinners out and Wednesday date lunches. I have blessings upon blessings. Every time I pass a radiation patient waiting wordlessly and alone for a taxi ride home, I know I have it better than the laws of fairness would dictate.

But here’s the thing. At 57, I’ve spent a lifetime taking care of other people, from a childhood spent trying to keep peace between my parents, to various boyfriends, three husbands, two kidlets, four stepkidlets, and miscellaneous pets — some of them not even mine. I spoke up for my mom at every appointment while she fought leukemia for six months, and sat with her while she died. Now I try my best to help my dad maintain some quality of life and sense of autonomy while he struggles with a growing dementia and paranoia. And, oh yeah, I work to grow a business. All this is life, of course, and I love living it full tilt. Cancer? Just my luck of the draw, and I can handle it.

But I can’t handle this: an almost complete lack of time/space/breath/peace/environment/solitude/conduciveness/peace/breath/space/time for healing. I can’t put myself anywhere physical or metaphysical where life and needs stand still long enough to shut down my caretaking heart and brain and simply be for enough moments to whitelight this insipid invasion. I can’t fill the reaching hands full enough to be able to let them go and hold my own hands for a day, or half a day. I guess I don’t know how, or maybe it just isn’t my turn yet. But I need this self-handholding, this affirmation, this love that comes from within and focuses on me. Just for a time.

When the kids were growing, a good friend told me that I didn’t seem to do anything for them. I still have no idea what she meant — I thought I was teaching them independence, along with every skill I knew. Another told me that I sure didn’t have any trouble taking time for myself — when I told her I had enrolled in a yoga class for one hour a week. I’ve been told that my (my!) priorities are skewed, and that I was “a failure as a wife, a daughter, and a mother.” In other words: “Don’t be who you are; be who I need.” I’ve dealt with it. I’ve been Zen; I’ve persevered; I’ve adapted and chameleoned and given time and again, and still maintained some sense of self.

I’ve almost learned to let the words of idiots roll off my back, but then there are those with valid needs. I can’t be mad at my father for needing me, for calling six times a day and going through the same conversations and concerns and solutions every single time. I can’t be mad at a husband who wants me to put the computer aside for an hour a day, even though I have three more hours to go on top of the eight already used. I can’t be mad at siblings who are working their tails off to make their own livings and their own lives. And I’m fighting the urge to be mad at myself — for not being fast enough to accomplish mountains in minutes of time, for my tenuous grip on patience, for my occasional need to bitch and moan and my wimpiness for not just standing up and screaming when I need to.

So I don’t know where to point this anger, but it’s here. Finally, I am mad.

Life: Not for the Squeamish

Tiny Flower, Pam Goode

Tiny Flower, Parking Lot, Presbyterian Cancer Center

I walk into my second radiation treatment behind a woman in a fun skirt made of vintage tablecloths, her round head sporting the new growth that looks like peach fuzz. An attendant in an orange shirt helps a blanket-wrapped man from the wheelchair into a waiting car. I see two other patients, both with walkers. The youth of my radiation techs looks good to me now, and the way Amanda’s face lights up when I finally notice she is pregnant and ask about the baby makes my morning. Outside of Amanda and maybe the cute young tech, I look to be the healthiest one here. I feel the need to help carry those who are dealing with so much more than I am, but it isn’t time — I don’t want to infringe.

They say radiation is a breeze, and so far it is, as long as you don’t stop to consider the deadly rays funneled into your body daily — those very rays we’re taught to fear and work to avoid. And as long as you don’t look around too much at the others sharing your journey.

Over the past few weeks, waiting for this day, I’ve dreaded the start of radiation because to me it meant this: thinking about cancer for an hour out of every 24 for seven weeks. Now, I know that it will mean this: hurting for every person I see here daily, and understanding that pretty much every one of them is facing a mountain far higher than mine. I am so lucky. Why?

I hope this is the only time in my life that I’m given free and preferred parking. The woman who chose the space next to me sat in a battered once-red car with her hand to her head and the windows down. She didn’t look up when I eased into my car. It was 10:13. Of course it was — it’s my lucky number.

Cancer is not the hardest time I’ve faced. Watching my mother die and trying to steady my father each day as his mind fades top the list. Dealing with pain I’ve caused others is a close second. These passages are agonies. Cancer is a wrench in your life-clock, a rewriting of plans, an upending and introspective re-centering. In a way, it is death and rebirth without the dying.

I don’t know why I have cancer, and I don’t know what cancer wants from me. I know we don’t need more suffering; we are overrun with suffering. Maybe we simply need another voice. Do we? With cancer claiming an ever-increasing percentage of the population, surely the numbers begin to blur. But I can be a voice. I can see beauty and celebrate with awe and I can create, after a fashion. This daily dose of hard-awareness will fuel me, once I release my grip on the melancholia of it all.

We are born into this life fairly fearless, but our willingness to grasp the new is fleeting. More and more I realize that fearlessness only returns to us after we open our eyes and drink in the realities, both good and bad, that surround us. Awareness and action: my two new friends.

23

Mosaic Portrait by Pamela GoodeHaving just finished a self portrait from a photograph taken when I was 23, I’m rather enamored. She’s hanging on the wall across from me and, flaws aside, I like her. I like who she was — timid, too quiet, gentle and reticent — and I like who she’s become — brash, passionate, level-hearted, and wild for life. I like looking at her and knowing that she’s okay now, and that I am too. I like considering the deepness of her eyes so young, and knowing that I made her, moment by moment, each of 21,020 days now, give or take a few leap years. I like looking at her as she is, unaware of the intervening decades, and as I am now, aware and more or less okay with them. And I wonder, if she had peeked out the window in 1978 and caught a glimpse of us at 57, what would she say to this older self?

Would she be surprised at the friends I still hold close? And those I’ve let go?

Would she be surprised that I still sew, that I still read Faulkner, Eliot, and Nabokov, that I still write, that I’m still slow to speak?

Would she wonder how I found the nerve to travel alone, to open a business, to finally crack in the face of inequities and speak out, make waves, lose friends?

How disappointed would she be over my first marriage? How angry that it took me so long to learn to speak? How devastated over the too-many-times that I kept my mouth shut?

How much in awe at knowing our children, so like her and yet so not?

How stunned to realize that they are both older now than she is?

Our mother died six years ago, and missing her has changed my view of aging — a bit. I used to surprise myself by seeing her in the mirror now and then, and finding her skin across my legs and arms. Sometimes I scan the road ahead of my car, and I know I’m looking through my mother’s eyes, seeing with her hazel irises and interpreting my view in that funny way she had. For so long, I didn’t like these intrusions of age, but now I welcome them as a little more time spent with the woman who gave me life and shared it with me longer than anyone I know.

And when I glance across the room to 23 now, I’ve got that motherly thing going on. I want to protect her, to encourage her, to give her a fear of not living, to make sure she wrings every drop of life out of her years. In a way, I’m re-mothering myself, and she’s re-childing me.

Here’s what I miss most about those early years: knowing what you love and believing you’ll never, ever let go of it, for any reason; the certainty that everything is possible; being an impetus for change rather than fearing it; sharing a comfortable relationship with time; believing you’ll always be beautiful.

So yeah, she’s staying on the wall right in front of me. I suggest you post an image of yourself on the wall too — it’s quite the kickstarter.

Dear Cancer, I Am Not Alone, Part 2

Surgery-Day Post Redux, updated with images that have come in during the past week. The June 29 post was seen by 5 times the number of people who usually check out my blog, and more than twice as many who visited this blog on my best day ever. How many of these visitors actually know me? A fraction. How many hate cancer? Every single one of them.

After a week of rest followed by a great pathology report, tissues are healing and the mood in our house is MUCH lighter. Still treatments to follow, as well as many slow days of trying to find my way again. But make no mistake: science is a wonder and I wouldn’t walk this path without it, but love — even the love of strangers who support us with a smile or a hand or a photograph or a word or prayer or thought or mention of our name or even an acknowledgement that we are all on this path of life together — love in every form from the fieriest passion to the innocence of children in the surf to the gift of human affirmation — love is a damn strong tonic.

This journal is a seed, and these photographs a fledgling reinforcement that we are one in wonderful ways. I’ll keep adding pics from any who send them in the process of building a network for any who need it at any time for any reason anywhere in the world. Cause this love ain’t just me babe — it’s for all of us. Just click on the first image for a really nice slide show.

Today is the day they slice you out of me, you and all of your little scouts and parasites, you with your wily ways, greedy fingers, silent chewing, your poison, your hate. You are not me. I am not you. I will not be you. You’re outta here, and you’re not coming back. And I am not alone.

Many thanks to the fabulous friends, friends of friends, role models, ass kickers, lovers, survivors and supporters for these funny, touching, inspirational photographs. I love you all!!!

Dear Cancer, I Am Not Alone

Today is the day they slice you out of me, you and all of your little scouts and parasites, you with your wily ways, greedy fingers, silent chewing, your poison, your hate. You are not me. I am not you. I will not be you. You’re outta here, and you’re not coming back. And I am not alone.

Many thanks to the fabulous friends, friends of friends, role models, ass kickers, lovers, survivors and supporters for these funny, touching, inspirational photographs. I love you all!!!

Good Neighbors

Chalk Drawings

Good Neighbors:

Put your newspaper on the porch if it looks like rain.

Don’t let their dogs sit on your flowers.

Offer to run to the store when you have the flu AND small children.

Use the back door.

Sit on the porch with you and watch the world go by after a long day.

Smile and wave when you’ve invited three friends and six toddlers and a couple of dogs to set up kiddie pools and hoses on the “beach” you’ve made in your shared driveway.

Leave fresh fruit or veggies or flowers by your door sometimes without even a note, because a gift is a gift and they’re not in it for the recognition.

Leave sweet hellos and chalk drawings “just because.”

Walk your dog when it’s raining because they’re walking theirs anyway and they’re already wet.

Don’t look at you with the sad pity face when they hear you have cancer or have lost a job, but walk right over with a bottle of prosecco and a funny movie and say “Get on the couch, we’re gonna laugh for a while.”

Thank you for planting and pruning and weeding and making the neighborhood all homey and happy, and order a pine straw delivery as a thank you.

Notice when they haven’t seen you in a few days and knock on the door to make sure you’re okay.

Don’t call the police when you really need to blast out Earth, Wind and Fire and DANCE for just one song.

Love it when your kids knock on their door and ask for a popsicle.

Will laugh and claim they were awake anyway when your alarm accidentally goes off at 3 AM two nights in a row.

Share cuttings of Aunt Myrtle’s heirloom perennials.

Always wave. Because nothing beats acknowledging the existence and validity and humanity of those we live among, and we all very simply need that.

Matrix

Matrix, Photo howtogeek.com

I can’t stop the numbers. They trill down my field of vision — awake, asleep, involved or staring into space, alone or with the ones I love. I’m not even certain if I’m seeing real numbers spewed like actuary tables of my years left on the planet, or colors like I’ll use to paint the remaining days, or simply a disconnect, as if all the trains are leaving the station at once and I can’t read the numbers fast enough to know which handle to grab for hoisting myself onto this ride.

Even though I love a metaphor, and this one certainly fits, I hate the numbers. I’m not given to panic attacks, but even in the heart of my quiet moments, I find myself not breathing, or breathing too much, or stopped in my tracks wondering how to breathe, and of course I blame this all on the numbers.

I am awash with numbers. Statistics, probabilities, centimeters, directions, weights and measurements, years, months, days, recovery times, usable hours in a day, fractions for dividing available time into necessary tasks, blueprints for the time I have left. I’m not a numbers girl, and I want them to go away.

As days go, I’ve been a little better lately — more time with family and a few friends, more emails answered and a more manageable pile of things left undone. And I’ve been a little worse — more in need of two bodies that will pin me between them on the sofa in the evenings, laughing at nothing and making sure I stay upright and intact. For every bit of normal-ness I wear in a day, I carry three times the weight of embryonic panic.

And so I stare a lot more now, looking for that steady place in my soul that keeps me still. Trying to find the balance in breath, which is shockingly difficult when you’re off kilter. Trying to live the truth that what’s “important” will vary on a daily (hourly) basis, and that it doesn’t matter if others don’t understand.

In a former life a coworker said, “Every time I look over, she’s just staring out the window,” and another said, “She’s not just staring, she’s designing — that’s how they do it.” And I hope (and believe, in a very small way just now) that I’m designing. I hope that my staring and breathing is giving (new) life to the balance of my days. I hope soon the numbers will stop and the design will begin to make sense in a way that I can recognize and welcome and begin to play with like fingerpaints, when everything is possible and there are no lines or graphs to fit into.

But for now, there are still the running, screaming numbers. Surgery in nine days. Anticipated one week recovery. Anticipated three to four weeks healing. Hoped-for one week balloon radiation; otherwise five – seven weeks of daily radiation. Five years (1,825 days) taking an estrogen-sucking drug (“If you want to live,” said doctor #1) or (“Your choice,” said doctor #2).

And Poof! Over. Done with. On with your life.

But I will never be the same. And it will take a lot of staring and holding and breathing to get me to the next place.

Color Me

Fluff my petals, Sweet Pink. Splatter me with color til I’m overfull and drool my yellow footprints smack across the roads. I crave the crazed inanity of a blue-tailed skink, the bite-me brilliance of a psycho-electric bleeding heart, the frivolity of sidewalk elms sporting useless knitted frocks. Color me. Color me to insanity and genius, then wipe me clean and color me some more.

The photos below are from recent walks around Charlotte, mostly in South End. Newspaper Box on Camden Road, Mural Detail by Carlleena Person on Camden Road, Glass at Ciel Gallery, Spinach Wrap at Common Market, Farmer’s Market Veggies, Candy Wrapper Purse (happily mine), Pastels at Cheap Joe’s Art Stuff, Road Kill of a Kinder Kind on East Boulevard, Smiley Face on the Painted Bench at Common Market, you make my days.

Coming Home

Fluff my garden
Sweet pink.
Rustle me til all my pollen whirls
And let me water you
With sticky sweetness
Top to toe
In the dew-wet morning.
Wild
Flowers.

c. Pamela Goode