Dear Cancer, I Am Not Alone

Today is the day they slice you out of me, you and all of your little scouts and parasites, you with your wily ways, greedy fingers, silent chewing, your poison, your hate. You are not me. I am not you. I will not be you. You’re outta here, and you’re not coming back. And I am not alone.

Many thanks to the fabulous friends, friends of friends, role models, ass kickers, lovers, survivors and supporters for these funny, touching, inspirational photographs. I love you all!!!

Matrix

Matrix, Photo howtogeek.com

I can’t stop the numbers. They trill down my field of vision — awake, asleep, involved or staring into space, alone or with the ones I love. I’m not even certain if I’m seeing real numbers spewed like actuary tables of my years left on the planet, or colors like I’ll use to paint the remaining days, or simply a disconnect, as if all the trains are leaving the station at once and I can’t read the numbers fast enough to know which handle to grab for hoisting myself onto this ride.

Even though I love a metaphor, and this one certainly fits, I hate the numbers. I’m not given to panic attacks, but even in the heart of my quiet moments, I find myself not breathing, or breathing too much, or stopped in my tracks wondering how to breathe, and of course I blame this all on the numbers.

I am awash with numbers. Statistics, probabilities, centimeters, directions, weights and measurements, years, months, days, recovery times, usable hours in a day, fractions for dividing available time into necessary tasks, blueprints for the time I have left. I’m not a numbers girl, and I want them to go away.

As days go, I’ve been a little better lately — more time with family and a few friends, more emails answered and a more manageable pile of things left undone. And I’ve been a little worse — more in need of two bodies that will pin me between them on the sofa in the evenings, laughing at nothing and making sure I stay upright and intact. For every bit of normal-ness I wear in a day, I carry three times the weight of embryonic panic.

And so I stare a lot more now, looking for that steady place in my soul that keeps me still. Trying to find the balance in breath, which is shockingly difficult when you’re off kilter. Trying to live the truth that what’s “important” will vary on a daily (hourly) basis, and that it doesn’t matter if others don’t understand.

In a former life a coworker said, “Every time I look over, she’s just staring out the window,” and another said, “She’s not just staring, she’s designing — that’s how they do it.” And I hope (and believe, in a very small way just now) that I’m designing. I hope that my staring and breathing is giving (new) life to the balance of my days. I hope soon the numbers will stop and the design will begin to make sense in a way that I can recognize and welcome and begin to play with like fingerpaints, when everything is possible and there are no lines or graphs to fit into.

But for now, there are still the running, screaming numbers. Surgery in nine days. Anticipated one week recovery. Anticipated three to four weeks healing. Hoped-for one week balloon radiation; otherwise five – seven weeks of daily radiation. Five years (1,825 days) taking an estrogen-sucking drug (“If you want to live,” said doctor #1) or (“Your choice,” said doctor #2).

And Poof! Over. Done with. On with your life.

But I will never be the same. And it will take a lot of staring and holding and breathing to get me to the next place.

Down Deep

I’d been looking for ten months and one week. Not constantly, of course, but there were more than a few sporadic foraging forays when my aggravation billowed to extremes. Where could I have put them? Were they gone? I remember thinking, “I’ve got to move this before Vernon sees it and heads to the trash can. I know — I’ll hide it under the bed.” But it wasn’t under the bed — not a single one of the many times I fell to my knees and poked my hands and head beneath the dust ruffle, scanning, of course, nothing but dust.

It wasn’t in any closet in the house, carefully secreted behind ski parkas, the wet suit or boxes of Matchbox cars. It wasn’t in the attic, playing coy behind a bag of tinsel or that inflatable reindeer. It wasn’t in my trunk, which inexplicably still holds some giftwrap bought on sale four summers ago. It was just gone, and I moaned about the loss often — and loudly.

Naturally, we all suspected Vernon, who often views my “treasures” as mouse fodder, and 160 used napkins from a barbecue dinner ten months ago stored in a Hefty bag would certainly top that list. But I had big plans for them, and he swore up and down that he hadn’t touched them. And after all, I had told myself that I had to move them. Didn’t I move them? And where the hell were they, hidden so well that I hadn’t stumbled across them in ten whole months?

They weren’t just any napkins. I handpicked six different fabrics and hand-pinked them for my son and daughter-in-law’s rehearsal dinner. Besides the sentimental value, which was elephantine, they were splendid, happy fabrics, which allowed me to justify the purchase because I knew I could use them for fun dinners on the lawn, and make patchwork fabric for a sundress and some nifty studio aprons. And now, it was an absolute necessity to make a string (or five) of bunting flags. Quite simply, no other fabric would do.

And so this morning you could have found me again on my knees, poking impotently about beneath the dust ruffle and pulling back empty-handed and pouting, tiptoeing through the attic to peer high and low in the dim morning light, opening and closing one closet door after another.

And then suddenly I found them. Sitting in the very same bag in the very same corner they had enjoyed for the last ten months (and one week), with a snowfall of boxes hiding them quite neatly. I thrust my hand down and claimed them, slung them over my shoulder like a jolly old guy, hoisted them into the washer, and jumped into Vernon’s unsuspecting arms as he was climbing the stairs. “I found them! I found them! I found them!” Sometimes it’s the little things . . . .

I knew a girl in high school, Karen, who used the following as her Senior Quote: “Itching for what you want doesn’t do much good; you’ve got to scratch for it.” And usually, you gotta scratch pretty damn hard. They say Seek and Ye Shall Find. I seeked, sought, soaked — nothing. Sometimes you gotta dig down deep. As humans, we have an aversion to it, but in my opinion, that’s where your life is waiting.

Or in my case, bunting!

Bunting

Bye Bye Baby . . .

When I signed the lease on a small and buggerdly ugly space on May 20, 2008, a former friend wrote me the following: “It was a rainy day with big dark clouds and secret whispers floating throughout the air the day Pam Goode moved into her new studio space. Her head was heavy and felt full of cobwebs, and the room was not worthy of energy. It was just a smelly, dank, gross, dark, negative space with a terribly big bad vibe — and nothing could be done to save her from the frightening fate that was ahead.”

I bought a lime-scented candle and went at it.

Frightening fate, indeed. When I opened Ciel Gallery + Mosaic Studio, I had zero experience running a gallery — but I knew there were artists who needed a space to exhibit, and I knew I could provide that. I had zero experience selling art — but I knew I could speak knowledgeably about the work. I had zero experience teaching, but I knew I could share my passion. I had a very, very minimal bit of experience in social settings — but I knew I could be articulate about my love of mosaic art, even if more frivolous chit chat wasn’t my thing. I wasn’t much with a hammer, but give me a crowbar and a paintbrush and I can do wonders.

In short, it worked. And it worked because it was everything I love all rolled into 588 square feet. “Find your passion,” they say.

Frightening fate, indeed. I walked in three years and three months ago with little more than an idea, a smidgeon of unexpected cash, a perhaps ill-advised amount of energy and optimism, and an enthusiastic husband. Today, I closed the door and walked out an entirely different woman.

It all began with a fairly modest plan.  But you know how our offspring are . . . . She wanted to grow, wriggling and pushing against her baby-ness, swimming laps around the woman with one toe in the water, testing for tepid. Finally, I stood back and let her have her way with me.

A favorite mantra is that in order to bring change to your life, you must first make space for it. In this instance, the “space” was very literal and, uncharacteristically for me, more external than internal. That 588 feet changed my life, not only with her lime green floors (she insisted), but with her open-door policy and her abundant trust that everyone who stepped inside would become a friend. She was right, of course, and the “space” that we made together with several hundred artists and students was not only a gathering spot for mosaic art, but a sanctum for laughter, learning, letting go, and forging ahead.

I do think it’s possible for a place to have a smelly, dark, negative vibe. But I also believe that sometimes that smelly, dark, negative vibe is coming less from the smelly space, and more from the smeller.

It’s funny how some of us believe that nothing is possible, and others of us believe that everything is possible. Reality, of course, is surely somewhere in the middle, but as always, we tend to get what we’re looking for. Actually, we usually get a whole lot more.

The new space is perhaps more frightening than the first — crumbling floors, three layers of bad ceiling that need to be removed , uneven walls and missing plumbing. Crowbar heaven.

Old Ciel, you were my first, and I’ll never forget you. New Ciel, bring it on. Cold water, trepidation, frightening fate and all.

Bye Bye Baby — see you around.

And all of a Sudden . . .

Big Ben by Martin Keene

the wait was over. It’s like the Limbo Dial spun itself silly and suddenly I was plunked down on the sidewalk, handed a quarter, and told to be on my merry way. And a merry way it shall be. But still . . .

I can’t help wondering who the timekeeper of this universe is. I can’t help wondering why forward motion stops with a jerk and leaves you dangling on the threshold of a leap. I can’t help wondering what lubricates the rusty key and gets the whole shebang moving again just as if you didn’t spend those months staring at days that crept by, eying you warily to make sure you stayed put, uninvolved, uninvited, fettered and quite inanimate. And most of all, I can’t help wondering why the wheel stops short for so many of us at almost the same exact moment in this anathema called TIME, and how it can be possible for the wheel to wind back up and heave forward in a single motion, the same single motion at the same single moment for those same ones of us again. And perhaps . . . I wonder . . . could groups of us be united not so much by common traits or experiences or hair color or literary loves, but simply because we’ve found ourselves on the same capricious wheel, whirring along at the same speed, sharing the same lulls, the same bumps, the same spurts? Could it be?

And so the wheel begins again and it’s almost as though it never stopped. Flurry replaces lethargy; the mind spins; feet become fleet; busy-ness soothes us and feels good. I don’t know what it meant — the waiting — but I’m glad it’s gone for a time. Godspeed.

The Summer We Waited

Waiting, c. Pamela Goode

Between the idea / And the reality / Between the motion / And the act / Falls the Shadow ~ T.S. Eliot

Am I going to fail my Zen test because I can’t love the shadow? I’m trying, really I am. I know good things will come, that fruition takes time, but . . . .  Good things come to he who waits is, I’m sorry, crap. Sitting around waiting never got anyone anywhere.  Good things come to those who DO.  But . . . do what? Where do you go when there’s nowhere to go?

I hate waiting. Of course this is a pointless comment — does anyone like waiting? Waiting eats our time, our patience, our resolve, our certainty, our energy. Waiting sucks, quite literally, and I am sucked out.

The spring seemed (was) rife with possibilities. I worked to schedule my time to accommodate them all, made lists and guides and proposals, gathered supplies and references, made contacts  and pursued leads. And then I moved on to take care of everything else — all the things that don’t wait while we’re waiting.

And it was good, but then . . . nothing.

Patience, patience, all good things take time. Deadlines pass. Excuses made. New deadlines created that will then pass and more waiting, more setting aside new chunks of more focused time to complete what you offered to committed to wanted to complete even though the game keeps changing. And the waiting gets a little less enchanting, a little less hopeful, a little less patient.

I fully believe that for change to occur, we must make the space for it. We must empty ourselves of pre-conceived ideas, old habits, tired ways, and the blindness born of always seeing things in the same fashion. But even being open to change isn’t enough — we have to empty the closets if we want change to stay for a while. But how long do you wait? How long to you wait and believe, with that damn shadow pulling out every sneaky trick in the book to become your new best friend? At what point will I morph from the being-who-welcomes-my-full-destiny to the-lady-with-so-much-time-that-she’s-making-macaroni-mosaics?

Too-abundant and so-rarely-productive surplus of time, I hate you. I want to love you, but I don’t. I want what I’ve worked for, and I want it now. Or even tomorrow, but I’ve had it up to here with this flapping in the breeze.

It’s a funny thing about waiting. Funny in that f***you sort of way. Because in the interim, time does what times does best: it changes us. Not the change we planned for hoped for made space for welcomed, but in some Other way, a way that’s a bit harder to pinpoint, speaking with a softer voice and holding out a very blurry map, but helping herself to my closet space nonetheless.

*This is not the post I meant to write, but this is the post that came out. I meant to point you toward my two newest blogs (that’s what too much time will get you): Wild Hair Adventures, a compilation of my travel essays and photographs (toddler stage), and Ormolulu, a blog to celebrate junking excursions (still quite an infant). Hope you like.

rewrite

the world is topsy turvy on me now
and i am left to wonder
if my center is askew
or simply old
and hardened,
and seeing these new days with eyes
unable or unwilling
to adjust
from my accustomed way
of watching doing caring.
asking soft if i will need to (want to) (or be able to)
re-right (rewrite)
myself ,
or if the universe
will find her quiet balance
now
at last.
or maybe
we will both fly off our axes
toward
the twinkly
stars.

Promises to Keep

I am, these days, a poster child for depression: unwashed, unclothed, unkempt, unmotivated. But strangely not depressed. Well, maybe a little, but it’s more an easing, an inching, a cautious seepage toward the new, the unknown (and frankly unwanted).

Change in the New Year is, of course, so largely mythical. And yet sometimes change doesn’t need to be tangible to be real. The symbolism alone can be crippling.

I don’t do change well. I don’t go to bed well. I don’t get up well. Don’t like to get in the shower; don’t like to get out of the shower. I love life, but the segue between episodes can throw me into a dither.

“I wake to sleep, and take my waking slow./I learn by going where I have to go.” Theodore Roethke’s tenuous broachings became a mantra when I traveled through Greece alone for three weeks, knowing no one, not speaking the language. I was forty-two, coming out of a dark place in the midst of a charmed life, and those words have worked magic on me ever since.

And so you will find me at the start of every new year, poised for the weeks-long morning of pajamas, tea and fire, short of words but long on the silent questioning dance with whomever lives inside me.

And it will lead me along the long road home, toward those promises I keep . . . but slowly. Have patience.

And yet, as changes go, this year will bring some of the largest for me: the marriage of my firstborn, the college graduation and home-leaving of my baby, the declining health of my sole remaining parent, the impending cross-country move of my son, two very grand art achievements, the tearful closing of Ciel Gallery, an intense two-year labor of love, and decisions about my path from here. Pajamas and tea, indeed.

I recognize, of course, that change, even dreaded change, often brings unexpected blessings, and even less blessed changes help us evolve, most often for the better, kicking and screaming attendant. But evolution requires action, a meeting head-on and toe to toe with our hearts on our sleeves and our brains ready to verbalize and vocalize.  Backs straightened, eyes peeled, belts tightened, no shields. I like being a warrior, but I can get pretty whiny when the battle isn’t on my own terms.

But the promises I’ve made will rouse me, stumbling toward Saturday classes, weekend workshops, dinners and swim meets, deadlines, and the occasional requisite cleaning. Every smile will help me loosen the grip on the shield, step into the future, open the heart a bit more. But the goodbyes will never flow as easily as the tears, and I suppose that saline cleansing is part of the plan. So bring it on Life. Almost ready.

“This shaking keeps me steady. I should know.
What falls away is always. And is near.
I wake to sleep, and take my waking slow.
I learn by going where I have to go.”